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Research Article  |   March 2009
Perceptions of Cognitive Symptoms Among People Aging With Multiple Sclerosis and Their Caregivers
Author Affiliations
  • Marcia Finlayson, PhD, OT(C), OTR/L, is Associate Professor, Department of Occupational Therapy, University of Illinois at Chicago, 1919 West Taylor Street, Mail Code 811, Chicago, IL 60612; marciaf@uic.edu
  • Eynat Shevil, PhD, OTR, is Assistant Professor, Department of Occupational Therapy, Steyer School of Health Professions, Faculty of Medicine, Tel Aviv University, Tel Aviv, Israel
  • Chi C. Cho, MS, is Doctoral Candidate, Division of Biostatistics and Epidemiology, School of Public Health, University of Illinois at Chicago, and Research Assistant, Department of Occupational Therapy, University of Illinois at Chicago
Article Information
Geriatrics/Productive Aging / Multiple Sclerosis / Neurologic Conditions / Productive Aging
Research Article   |   March 2009
Perceptions of Cognitive Symptoms Among People Aging With Multiple Sclerosis and Their Caregivers
American Journal of Occupational Therapy, March/April 2009, Vol. 63, 151-159. doi:10.5014/ajot.63.2.151
American Journal of Occupational Therapy, March/April 2009, Vol. 63, 151-159. doi:10.5014/ajot.63.2.151
Abstract

OBJECTIVE. We sought to examine the nature and extent of agreement on cognitive symptoms reported by people aging with multiple sclerosis (MS) and their primary caregivers and the factors associated with disagreement.

METHOD. Data were generated from telephone interviews with 279 dyads of people with MS and their caregivers.

RESULTS. Eighty dyads (28.7%) disagreed about the presence of cognitive symptoms in the person with MS. Disagreeing dyads were of two types: a dyad in which the person with MS indicated no cognitive symptoms, but the caregiver did (41 dyads; 14.7%), and a dyad in which the person with MS indicated cognitive symptoms, but the caregiver did not (39 dyads, 14%). Multinomial regression showed that gender and the number of years the person with MS has experienced symptoms were associated with type of disagreement.

CONCLUSION. The results point to the importance of discussing cognitive symptoms with people with MS and their caregivers.