Brief Report  |   February 2015
Transition Needs of Adolescents With Sickle Cell Disease
Author Affiliations
  • Regina A. Abel, PhD, is Staff Scientist, Child Health and Education Laboratory, Program in Occupational Therapy, Washington University School of Medicine, St. Louis, MO
  • Esther Cho, MS, OTR/L, was Student, Program in Occupational Therapy, Washington University School of Medicine, St. Louis, MO, at the time of the study
  • Kelley R. Chadwick-Mansker, RRT, is Research Assistant, Hematology Department, St. Louis Children’s Hospital, St. Louis, MO
  • Natalia D’Souza, OTD, OTR/L, is Occupational Therapist, Kessler Institute for Rehabilitation and Program in Occupational Therapy, Washington University School of Medicine, St. Louis, MO
  • Ashley J. Housten, OTD, MSCI, MPA, is Postdoctoral Research Associate, Division of Public Health Sciences, Department of Surgery, Washington University School of Medicine, St. Louis, MO
  • Allison A. King, MD, MPH, is Director, Child Health and Education Laboratory, and Assistant Professor, Program in Occupational Therapy and Pediatrics, Division of Hematology and Oncology, Washington University School of Medicine and St. Louis Children's Hospital, St. Louis, MO; king_a@kids.wustl.edu
Article Information
Assistive Technology / Health and Wellness / Neurologic Conditions / Rehabilitation, Participation, and Disability / Stroke / Departments / Brief Report
Brief Report   |   February 2015
Transition Needs of Adolescents With Sickle Cell Disease
American Journal of Occupational Therapy, February 2015, Vol. 69, 6902350030p1-6902350030p5. doi:10.5014/ajot.2015.013730
American Journal of Occupational Therapy, February 2015, Vol. 69, 6902350030p1-6902350030p5. doi:10.5014/ajot.2015.013730
Abstract

OBJECTIVE. This article describes how adolescents with sickle cell disease (SCD) perceive their ability to perform everyday tasks required for transition to adult health care and independent living.

METHOD. The Adolescent Autonomy Checklist (AAC) was adapted to include skills associated with managing SCD (AAC–SCD) and was administered to adolescents during clinic visits. Participants indicated “can do already” or “needs practice” for 100 activities in 12 categories.

RESULTS. Of 122 patients, the percentage of adolescents who needed practice was greatest in living arrangements (38.7%), money management (35.8%), vocational skills (29.6%), and health care skills (25.5%). We found a significant effect of age and of cerebrovascular injury on the percentage of those who reported “needs practice” in multiple categories. We found no effect of gender and limited effect of hemoglobin phenotype on any skill category.

CONCLUSION. Findings support the need for educational intervention to improve transition skills in adolescents with SCD.