Katherine G. Meilleur, PhD, PPCNP, Minal S. Jain, PhD, PT, Roxanna Bendixen, OTR/L, PhD; Results From a Three-Year Pilot Study of Clinical Outcome Measures in Congenital Muscular Dystrophy. Am J Occup Ther 2015;69(Supplement_1):6911500182p1. doi: 10.5014/ajot.2015.69S1-RP301B.
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© 2017 American Occupational Therapy Association
Date Presented 4/18/2015
Through our novel prospective cohort study guided by the International Classification of Functioning, Disability and Health (ICF) framework, we identified and validated a battery of outcome measures in congenital muscular dystrophy (CMD). We discuss our 3-yr study, and we provide insight into disease progression as well as measures best suited for clinical trials.
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