Research Platform  |   July 2015
Results From a Three-Year Pilot Study of Clinical Outcome Measures in Congenital Muscular Dystrophy
Author Affiliations
  • University of Pittsburgh
Article Information
Musculoskeletal Impairments / Assessment/Measurement
Research Platform   |   July 2015
Results From a Three-Year Pilot Study of Clinical Outcome Measures in Congenital Muscular Dystrophy
American Journal of Occupational Therapy, July 2015, Vol. 69, 6911500182p1. doi:10.5014/ajot.2015.69S1-RP301B
American Journal of Occupational Therapy, July 2015, Vol. 69, 6911500182p1. doi:10.5014/ajot.2015.69S1-RP301B
Abstract

Date Presented 4/18/2015

Through our novel prospective cohort study guided by the International Classification of Functioning, Disability and Health (ICF) framework, we identified and validated a battery of outcome measures in congenital muscular dystrophy (CMD). We discuss our 3-yr study, and we provide insight into disease progression as well as measures best suited for clinical trials.