Research Platform  |   August 2016
Strategies for Engaging the Duchenne Muscular Dystrophy Community in Research
Author Affiliations
  • University of Pittsburgh
  • Children's National Health System
Article Information
Evidence-Based Practice / Musculoskeletal Impairments / Assessment/Measurement
Research Platform   |   August 2016
Strategies for Engaging the Duchenne Muscular Dystrophy Community in Research
American Journal of Occupational Therapy, August 2016, Vol. 70, 7011500004p1. doi:10.5014/ajot.2016.70S1-RP203B
American Journal of Occupational Therapy, August 2016, Vol. 70, 7011500004p1. doi:10.5014/ajot.2016.70S1-RP203B
Abstract

Date Presented 4/8/2016

Through parent-based and clinician-based focus groups, we qualitatively explored barriers to engaging families of children with rare diseases in clinical trials. The insight gained may improve the future design of clinical research protocols and improve participation in future clinical trials.

Primary Author and Speaker: Roxanna Bendixen

Contributing Author: Lauren Hache Morgenroth