Claudia List Hilton, Sophie E. Goloff, Ofra Altaras, Naomi Josman; Review of Instrument Development and Testing Studies for Children and Youth. Am J Occup Ther 2013;67(3):e30-e54. doi: 10.5014/ajot.2013.007831.
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© 2019 American Occupational Therapy Association
We reviewed 12 articles from 2012 that addressed development and testing of instruments for children and youths and American Journal of Occupational Therapy articles from 2009–2013 that addressed 11 activity and participation instruments to determine how well this group of instruments facilitates the generation of evidence sufficient to support practice in accordance with the Centennial Vision. We observed an increase in the number of instrument development and testing studies and in higher level studies and larger cohorts; funding was provided for almost half of the studies, and attention was given to use of blind testing and transition to adult-age assessments. Further development of performance-based activity and participation instruments; instruments that examine biomedical molecular–cellular, biomedical, and environmental mechanisms; and intervention fidelity measures and increased use of blind testing are necessary for occupational therapy to meet the Centennial Vision.
Basic and applied scientific studies related to skills, processes, and foundations for childhood and adolescent occupations
Factors that contribute to the success or failure of a specific frame of reference
Both qualitative and quantitative methodologies to address multiple facets of the above
Efficacy studies that examine interventions (efficacy, effectiveness, outcomes development)
Theory development and development of conceptual models that promote integration of theory and practice
Empirical studies conducted in context
Translational research providing information on applications to practice, policy development, systems change, and program development
The roles and participation of parents, siblings, and other family members within family-centered services
Longitudinal studies of the participation of children with special needs in their daily lives as they transition through childhood and adolescence into adulthood
Studies that examine factors central to the children, youth, and their families such as finding a friend, participating in community life, and procuring and maintaining jobs
Studies that examine the emotional and social cost of occupational deprivation and occupational injustice for children and youth such as depression, alcohol and substance abuse, and suicide in disenfranchised youth, and what this is costing emotionally to youth and family as well as to society.
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