Research Article
Issue Date: December 15, 2015
Published Online: December 15, 2015
Updated: June 13, 2018
Roles and Coping Strategies of Sons Caring for a Parent With Dementia
Alisa Grigorovich; Nira Rittenberg; Talia Dick; Ashley McCann; Amanda Abbott; Andrea Kmielauskas; Valerie Estioko; Sinthusha Kulasingham; Jill I. Cameron
Author Affiliations
  • Alisa Grigorovich, PhD, is Postdoctoral Researcher, Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Ontario, Canada
  • Nira Rittenberg, BSc(OT), is an Occupational Therapist/ Case Coordinator, Baycrest Health Sciences, Toronto, Ontario, Canada
  • Talia Dick, MSc(OT), Ashley McCann, MSc(OT), Amanda Abbott, MSc(OT), Andrea Kmielauskas, MSc(OT), Valerie Estioko, MSc(OT), and Sinthusha Kulasingham, MSc(OT), were Students, Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Ontario, Canada, at the time of the study
  • Talia Dick, MSc(OT), Ashley McCann, MSc(OT), Amanda Abbott, MSc(OT), Andrea Kmielauskas, MSc(OT), Valerie Estioko, MSc(OT), and Sinthusha Kulasingham, MSc(OT), were Students, Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Ontario, Canada, at the time of the study
  • Talia Dick, MSc(OT), Ashley McCann, MSc(OT), Amanda Abbott, MSc(OT), Andrea Kmielauskas, MSc(OT), Valerie Estioko, MSc(OT), and Sinthusha Kulasingham, MSc(OT), were Students, Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Ontario, Canada, at the time of the study
  • Talia Dick, MSc(OT), Ashley McCann, MSc(OT), Amanda Abbott, MSc(OT), Andrea Kmielauskas, MSc(OT), Valerie Estioko, MSc(OT), and Sinthusha Kulasingham, MSc(OT), were Students, Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Ontario, Canada, at the time of the study
  • Talia Dick, MSc(OT), Ashley McCann, MSc(OT), Amanda Abbott, MSc(OT), Andrea Kmielauskas, MSc(OT), Valerie Estioko, MSc(OT), and Sinthusha Kulasingham, MSc(OT), were Students, Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Ontario, Canada, at the time of the study
  • Talia Dick, MSc(OT), Ashley McCann, MSc(OT), Amanda Abbott, MSc(OT), Andrea Kmielauskas, MSc(OT), Valerie Estioko, MSc(OT), and Sinthusha Kulasingham, MSc(OT), were Students, Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Ontario, Canada, at the time of the study
  • Jill I. Cameron, PhD, is Associate Professor, Department of Occupational Science and Occupational Therapy and Rehabilitation Sciences Institute, University of Toronto, Toronto, Ontario, Canada; jill.cameron@utoronto.ca
Article Information
Alzheimer's Disease and Dementia / Neurologic Conditions / Occupation, Participation, and Health
Research Article   |   December 15, 2015
Roles and Coping Strategies of Sons Caring for a Parent With Dementia
American Journal of Occupational Therapy, December 2015, Vol. 70, 7001260020. https://doi.org/10.5014/ajot.2016.017715
American Journal of Occupational Therapy, December 2015, Vol. 70, 7001260020. https://doi.org/10.5014/ajot.2016.017715
Abstract

OBJECTIVE. Little is known about sons’ roles in caring for a parent with dementia. To ensure that interventions and practices appropriately match sons’ needs, we investigated their experiences.

METHOD. A qualitative descriptive approach was used; 20 sons of a parent with dementia participated in semistructured interviews.

RESULTS. Participants reported varied paths to becoming a caregiver, primarily undertaking a care management role and managing by using their own occupational experiences and receiving support from other family members, peers, and private and public community services. They experienced negative consequences such as participation restriction and stress and positive consequences such as feelings of satisfaction. Strategies used to cope included boundary setting and practicing self-care.

CONCLUSION. This study highlights the need to consider sons’ role as care managers for their parent with dementia in community-based settings, as well as their need for education and intervention. Occupational therapy practitioners can use this information to inform their practices and support clients and their families.