Poster Session
Issue Date: July 01, 2015
Published Online: February 09, 2016
Updated: June 13, 2018
How Do We Live With a Chronic Condition Without Expectations? A Family’s Story of Thriving With Dravet Syndrome
Author Affiliations
  • Medical University of South Carolina
  • Medical University of South Carolina
Article Information
Neurologic Conditions / Pediatric Evaluation and Intervention / Translational Research
Poster Session   |   July 01, 2015
How Do We Live With a Chronic Condition Without Expectations? A Family’s Story of Thriving With Dravet Syndrome
American Journal of Occupational Therapy, July 2015, Vol. 69, 6911520180. https://doi.org/10.5014/ajot.2015.69S1-PO5103
American Journal of Occupational Therapy, July 2015, Vol. 69, 6911520180. https://doi.org/10.5014/ajot.2015.69S1-PO5103
Abstract

Date Presented 4/17/2015

This research aims to increase awareness of the lived experiences of parents and siblings of a family member with Dravet syndrome (DS) and the impact of DS on the family’s engagement of meaningful occupations for the development of family-centered and occupation-based occupational therapy interventions.