Roxanna Bendixen, Lauren Hache Morgenroth; Strategies for Engaging the Duchenne Muscular Dystrophy Community in Research. Am J Occup Ther 2016;70(4_Supplement_1):7011500004p1. doi: 10.5014/ajot.2016.70S1-RP203B.
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© 2019 American Occupational Therapy Association
Date Presented 4/8/2016
Through parent-based and clinician-based focus groups, we qualitatively explored barriers to engaging families of children with rare diseases in clinical trials. The insight gained may improve the future design of clinical research protocols and improve participation in future clinical trials.
Primary Author and Speaker: Roxanna Bendixen
Contributing Author: Lauren Hache Morgenroth
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