Poster Session
Issue Date: August 2019
Published Online: August 01, 2019
Updated: April 30, 2020
Quality of Life in Families With a Young Child With Pediatric Autoimmune Neuropsychiatric Disorder Associated With Streptococcal Infection (PANDAS)
Barbara Demchick, ScD, OTR/L, FAOTA; Julia Ehler, MS; Shelly Marramar, MS; Alison Mills, MS; Amanda Nuneviller, MS
Author Affiliations & Notes
  • Towson University, Towson, MD, USA
  • Towson University, Towson, MD, USA
  • Towson University, Towson, MD, USA
  • Towson University, Towson, MD, USA
  • Towson University, Towson, MD, USA
Article Information
Neurologic Conditions / Pediatric Evaluation and Intervention / Basic Research
Poster Session   |   August 01, 2019
Quality of Life in Families With a Young Child With Pediatric Autoimmune Neuropsychiatric Disorder Associated With Streptococcal Infection (PANDAS)
American Journal of Occupational Therapy, August 2019, Vol. 73, 7311505156. https://doi.org/10.5014/ajot.2019.73S1-PO6005
American Journal of Occupational Therapy, August 2019, Vol. 73, 7311505156. https://doi.org/10.5014/ajot.2019.73S1-PO6005
Abstract

Date Presented 04/05/19

PANDAS is the abrupt onset of OCD or tics after streptococcal infection in a formerly healthy child. We used qualitative phenomenology to explore family quality of life (FQOL) in six families with a child who developed PANDAS in early childhood. Data were collected through interviews, which were transcribed and analyzed through a rigorous inductive process. Results indicate that PANDAS severely impacts FQOL, and OT's awareness of PANDAS may be key to supporting the child and family.

Primary Author and Speaker: Barbara Demchick

Additional Authors and Speakers: Julia Ehler, Shelly Marramar, Alison Mills, Amanda Nuneviller